NRAS Logo
Logged in as: pedro-pmc Search | Moderate | Active Topics | My Profile | Members | Logout

New Topic Post Reply
Different Consultant today Options
BarbieGirl
#1 Posted : Monday, October 17, 2011 5:54:52 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 1,110
Location: London
Ok, I was due to see my consultant today to determine if I was going on anti-TNF. I was called in to see a different consultant, hadnt even seen him in the clinic before, he didnt introduce himself so I have no idea who he was.
He was looking through my notes and said, "something more should be done for you, I could give you a depomedrone injection, have you ever had one before" I replied that I have had two at my last two appointment with Dr Garrood in July and September. I told him it helps my hip pain for around 2 - 3 weeks, so he decided thats what we would do. I told him that the pain from my hip keeps me awake, he didnt bother to reply. He left the room and came back with my consultant who decided to hold fire on anti-TNF until I get a hand scan done this Friday I cant get an appointment but I am to turn up around 9.30am
I repeated my concerns about my hip and was told that nothing showed up on the MRI, so just to go ahead with the depo jab.

On another note, I have been taking part in trials with a hospital in San Francisco and Guys to look at Sjogren's Syndrome, I dont have the results yet, but the rheumatologist I saw for this saw straight away that my left hand was swollen and then he saw I was having the MRI and asked about the hip, he said oh yes thats a trochanter bursa, you need physio and better pain meds.
If he can tell that after speaking to me for ten minutes why cant my consultant do the same? Physio for the hip hasnt been mentioned and when I ask for better pain relief they say they dont want to give me anything more than I have now.
You know what, I give up!! I will work as long as I can, I dont want to give up as when I gave up working in the school I was lonley and now I've managed to get used to being home caring for children, just seeing my sister. With nothing to do I shall go stir crazy, but who cares, not the NHS Sad
BARBARA
anne_t
#2 Posted : Monday, October 17, 2011 10:41:52 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/3/2009
Posts: 302
Location: Rainham Kent
Hi,
I used to go to Guys until Prof Panayi retired. I found I didn't always see him but the Registrar or Senior Houseman.
However I know they had a meeting afterwardds to go over everyone they had seen in the clinic that day.
They often were involved in trials etc. It all sounds very familiar. I have no answers I'm afraid , just hugs and sympathy.
Take care Anne
lotte
#3 Posted : Tuesday, October 18, 2011 11:11:52 AM Quote
Rank: Member

Groups: Registered

Joined: 10/12/2011
Posts: 28
hi, have you ever heard of a website called justanswer? you can go on there and ask an on line doctor a question and he will post a reply in about 15mins you have to pay but only if you are happy with their answer. i signed up ages ago and cant quite remeber how but if anyone would like me tpo ask a question for them i would be happy to and then i will just cut and paste the answer they give? x lotte
lotte
#4 Posted : Tuesday, October 18, 2011 11:44:06 AM Quote
Rank: Member

Groups: Registered

Joined: 10/12/2011
Posts: 28
hello barbara,
i am currently on this website call justanswer and i have asked a doctor re. the post you sent he is just getting back to me now so i will let you know if he says anything helpful. x lotte
lotte
#5 Posted : Tuesday, October 18, 2011 11:45:18 AM Quote
Rank: Member

Groups: Registered

Joined: 10/12/2011
Posts: 28
Dr Wajid says:
11:43 AM
Well her second doctor was right... She does have trochanteric bursa... In my opinion she should follow a rheumatologist instead of a regular physician
this is what the doc online said i hope this may be helpful ? x
lotte
#6 Posted : Tuesday, October 18, 2011 11:45:52 AM Quote
Rank: Member

Groups: Registered

Joined: 10/12/2011
Posts: 28
sorry that is what the doc on line said i hope it may be helpful? x
LynW
#7 Posted : Tuesday, October 18, 2011 1:43:32 PM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
Hi Barbara

Sorry to hear things are still no better with that hip! I think I already posted somewhere, but can't find it now, about trochanteric bursitis. I get this, although it has been settled for probably 18 months to 2 years now. I had a cortisone injection into the bursa using ultrasound; this ensures that the drug actually goes into the bursa rather than the surrounding tissues. I have also had physio for it which has helped strengthen the muscles. I can scan the exercises if you like and send them to you. Just let me know and I'll dig out your email address! You will have to go easy though to ensure you don't do further damage, especially whilst the hip is very sore!

I don't really understand why they're dithering regarding anti-tnfs. The results of a hand scan are not going to affect the ongoing treatment of the RA and in the meantime you do need something to provide better control of the actual disease. I never succeed in getting stronger pain relief ... seems some doctors just don't appreciate how difficult it can be living daily with chronic pain.

When are you due to see rheumatology again?

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

BarbieGirl
#8 Posted : Tuesday, October 18, 2011 9:39:05 PM Quote
Rank: Advanced Member


Groups: Registered

Joined: 12/3/2009
Posts: 1,110
Location: London
Thank you for the replies
Lotte, sorry I couldnt get to answer you previously, I can only get on when the children go home, then before I know it its 9 pm I do appreciate you doing that for me, it was very kind of you to take the time to do it. Of course the answer is right that the doctor gave, and I do always see a rheumatologist but unfortunately my rheumy seems to be a little indecisive!!
Lyn, thank you, I really feel I am being pulled from pillar to post here. My usual rheumatologist is a lovely guy, but he seems overly cautious, I am very much aware of the fact that anti-TNF isnt taken lightly, and can have awful side effects, and of course, dont always work, but how do you know if you dont give it a try? I'm very concerned that he sits and looks at me and then puts his head in his hands, shakes his head, leans forward and says I really dont know if we should do this, meaning the anti-TNF.
Ann, thank you for replying, I have always gone to Guy's for everything as I live within 2 miles of the hospital. I did attempt to change to the Royal Free, but I culdnt manage the underground as its mainly the old stations and there are loads of stairs with no lifts or even escalators. The consultant there was lovely, I saw him privately first and he immediately diagnosed me and sent a letter to Guys for me re treatment, which they kind of took the advice but not entirely. I saw him privately at London Bridge Hospital, but couldnt afford to continue to see him there.
He wants to do the scan to check how much inflamation is in my hands, if it isnt much he wont put me on the anti-TNF. My next appointment at the clinic is 24 November, when he should finally decide what to do.
How did you manage with the bursa Lyn? I am finding it hard to get out of bed, all night I cant move due to pain, it wakes me so many times in the night that when the children go home I end up taking a nap, then eating dinner at 8 and not wanting to go back to bed until 11 Sitting here now my hands are beginning to swell and feel painful, so who knows what he will do?
I am going to try to see one of the senior gps in my practice and get my anaemia sorted and hopefully some sensible pain meds even for just at night.
Ok, well, thats about it, and once again thank you for all your help everyone, its always good to know I can vent on here, and people understand x
BARBARA
LynW
#9 Posted : Thursday, October 27, 2011 1:40:41 AM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
Hi Barbara

Sorry for delay getting back to you, not been too well!

I think trochanteric bursitis is possibly one of the worst because it can virtually paralyse you. Like you, I spent many evenings not wanting to go to bed knowing that within a very short time the pain in the hip would appear and I would be stuck in one position unable to move. Unfortunately it isn't something that will go away on it's own and needs probably both a steroid injection into the bursa sac and some exercises to strengthen the hip muscles and stretch the iliotibial band. In the meantime it might be worth 'cold-packing' it at bed time, although it's a difficult area to hold anything in place!

I do hope you are able to get something sorted soon. You seem to have had so much to put up with for so long Sad

Take care Barbara,

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

Users browsing this topic
New Topic Post Reply
Forum Jump  
You can post new topics in this forum.
You can reply to topics in this forum.
You cannot delete your posts in this forum.
You can edit your posts in this forum.
You cannot create polls in this forum.
You cannot vote in polls in this forum.

SoClean Theme By Jaben Cargman (Tiny Gecko)
Powered by YAF 1.9.3 | YAF © 2003-2009, Yet Another Forum.NET
This page was generated in 0.137 seconds.